Where & When

Worldwide Lyme Disease Protest 2017


Tuesday July 18th 2017 – 11.00am – 3.00pm – Parliament Square, Westminster, London

Buses to/from WestminsterTube MapToilets


On Wednesday 24th May, 2017, we will assemble, at 11.30am at LOCATION 1;

**** GMC (General Medical Council) Building ****

Address; The Tun, 4 Jackson’s Entry, Edinburgh EH8 8PJ

At 1.30pm, we shall move onto, LOCATION 2;

**** Holyrood Parliament Building ****

Address; Scottish Parliament Building, Edinburgh EH99 1SP

The protest will continue, until 3pm.

Scottish Lyme Disease Protest 2017 -map

 Worldwide Lyme Disease Protest 2015 in London

Giant Tick - Lyme Disease Protest London 2015A giant tick costume was sported by one of their number, while green spiral-shaped balloons mimicked the shape of the germ that infects them all.

Many other countries across the world, from Australia to Sweden, from Canada to Spain; held similar rallies and events during May, the month chosen to highlight Lyme disease worldwide.

German patients protested in 5 major cities, French patients in 3, while US patients protested outside the 2 main offices of the Infectious Disease Society of America – the authority that has influenced all medical treatment of Lyme disease for the past 35 years.

The UK protesters had travelled from all parts of the country to demonstrate outside the Department of Health building, Richmond House in Whitehall, and to show their dissatisfaction with Lyme tests and treatment.

They insisted that the evidence about the persistence of the disease is being ignored by the Department of Health, who are failing to acknowledge that many thousands of patients have become chronically infected.

Protesters against Lyme Disease London 2015Warning the Public of the Risks of Lyme Disease

Leaflets and tick-warning cards were handed out to the public, giving information on how to deal with a tick bite, plus measures to reduce the risk of being bitten.

Lyme Disease Tick Leaflet Front

Lyme Disease Tick Leaflet Rear

Lyme Disease victims demand to be heard

At the same time as the protest in London, a similar event was held in Hull outside the Guildhall, where it attracted the attention of local dignitaries, including the ex deputy Prime Minister, John Prescott.

In Whitehall, the demands of the UK Lyme petition were read out as part of the following declamation, and it was hoped that they would echo across the road to the gates of Downing Street:

”We call on the Government of the United Kingdom and Northern Ireland to heed us. We speak with the voices of 13,000 who have signed their names to these demands….

  1. We demand that Lyme borreliosis and all tick borne diseases be made a Schedule 1 notifiable disease, so that the true incidence becomes apparent.
  2. We demand that better methods are actively explored to test for and diagnose both acute and chronic infections; and doctors should be allowed to make clinical diagnoses, rather than depend on the present unreliable blood tests.
  3. We demand that doctors be trained in the treatment of borreliosis and other tick-borne diseases. Given the number of patients who may now be infected, we ask that special clinics are established where the diverse range of the effects of the disease can be acknowledged and treated.
  4. We demand that treatment is extended for as long as necessary, and to include the use of high dose, combination or long-term antibiotics, especially in those patients who have been ill for a long time. We need patients to be followed up and monitored for years in some cases, to monitor relapses of the infection.
  5. We demand that medical schools and practising physicians be made aware of the research and latest knowledge in diagnosis and treatment of Lyme disease, as well as the other emerging infectious diseases carried by arthropods, which may cause co-infections in patients with borreliosis.
  6. We demand that all government agencies for the Environment, Health, Sport and Tourism use their resources to make the general public in the UK aware of the potential risks from tick bites. “

Lyme Disease victim tells her story as a rapThis was followed by a rap written by a 17-year-old patient on behalf of herself and countless others who are having to try and fund their own private treatment for this cruel infection.